One of the biggest questions I get about the boys and OCA is: what can they see? The short answer is that each person with albinism has varying vision, but generally it's like a low-resolution digital picture.
The longer, much better answer is in this video presentation by NOAH. I'm SO glad this is finally available in a form I can share because the information and pictures are invaluable! It's a little long, but if you want to get the general idea quickly, fast forward to the part that shows visual representations of what a person with 20/20 vision sees compared to what someone with 20/100 or 20/200 vision sees. Emerson's vision at this point is about 20/300 - 20/400 and Fionn is around 20/100 - 20/200.
Thank you so much for this video, It answered so many of the questions I've had about how the boys see, what we can expect as they get older and how people with albinism function in the world. It made me feel a lot better to hear a person with albinism describe the ways that he's learned to cope and that things really aren't as bad as people expect. I heard someone say that we would be amazed at the ways in which the boys would figure out how to deal with difficulties. I'm just glad they have you and Robbie to encourage and support them. Thanks for sharing.
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