Tuesday, April 19, 2011

Thank You!!!


Thanks to your generosity, we collected enough sunscreen to fill a large flat rate box! It's off to Under the Same Sun and then to Africa where it's so desperately needed.

Considering that a bottle of sunscreen costs anywhere from $7-$10, this collection is no small feat. In fact, it cracked me up how many people said, "Do you know how expensive sunscreen is?!"

Uh...yeah. :)

We will continue to collect sunscreen in lieu of birthday and Christmas presents, so keep it coming! For more information about this campaign, click here.

Saturday, April 16, 2011

Be True to Your School

These days, I spend most of my time like this:


I have many fascinating and brilliant things to write about (stop snickering), but lately I've been so swamped with three kids and three classes that I just can't get to it. Seriously, I'm so sleep deprived that I developed what I call a "slutter" - a slur and a stutter mixed together. You could arguably add "slut" in there, but that's another story from another time period.

For the most part I love being in school and wish I could be a professional student (unfortunately Robbie curls into the fetal position whenever I say the word "Ph.D.") I'm in no hurry to graduate, but when I have insane weeks like the past couple weeks, I find myself obsessively checking how many classes I have left until graduation. The answer is always the same: too many. 

I spent the first half of grad school at a seminary on the University of Chicago campus in Hyde Park. I loved commuting there for intensives every January, but the commute - combined with major changes that the school made after the recession hit - became too much for me last year. I transferred to an ecumenical seminary in Detroit that I was already attending as a guest student. 

Hyde Park could look rough if you went too many blocks in any given direction, but for the most part it was a gorgeous, affluent campus. Many of my classmates affectionately called our seminary "Hogwarts" after the old gothic building and the old rumpled staff. 

Now I go to school in an old church in downtown Detroit where most of the neighborhoods are rough. I'm only one of a couple non-Christians, which can be frustrating and lonely sometimes. But there are a lot of things I love about the seminary: the energy, the activism, the racial diversity...the groundskeeper whose name really is Willie. 

Last Saturday after class I took some pictures of the Heidelberg Art Project going on next to the school. The shoes represent people living on the street, but you can find better information about it here.

Typical of the area - one abandoned, one beautifully renovated.







While I was at it, I took some pictures of our school. It's no Hogwarts...but it has a magic all its own. 














Tuesday, April 12, 2011

It's Official - I'm Offbeat

I'm so honored that Miren's birth story was published today on Offbeat Mama! It was fitting to re-read the final lines about struggling to remember my gratitude as I sat sipping a "boy this has been a long day from hell" Oberon. Most days I remember. Some days I need a few extra baby smiles...and a good beer.

Tuesday, April 5, 2011

What Can They See?





One of the biggest questions I get about the boys and OCA is: what can they see? The short answer is that each person with albinism has varying vision, but generally it's like a low-resolution digital picture.

The longer, much better answer is in this video presentation by NOAH. I'm SO glad this is finally available in a form I can share because the information and pictures are invaluable! It's a little long, but if you want to get the general idea quickly, fast forward to the part that shows visual representations of what a person with 20/20 vision sees compared to what someone with 20/100 or 20/200 vision sees. Emerson's vision at this point is about 20/300 - 20/400 and Fionn is around 20/100 - 20/200.

Tuesday, March 29, 2011

In the Eye of the Storm


Whenever I see friends and family these days, the first thing out of their mouths is, “So…how is it going with three kids?” They ask the way you might ask someone who just survived a natural disaster, “So…what was it like?”

I suppose that is apt considering some days I feel like the five of us are our own little tornado. We sweep into a room with a flurry of sound and chaotic activity and we leave a trail of destruction in our wake. I’m learning that a successful outing is possible, but requires careful strategizing. Let’s just say I really wish I had paid more attention when I read “The Art of War” in college.

Our first outing was to take Miren to a doctor’s appointment when she was a few days old. The doctor asked me how things were going and I replied in a cocky mother-of-three tone that things were fine. SO much easier the third time. Then I took off her diaper for a weigh-in and she promptly peed all over her only clean diaper, her only outfit, and her only coat. Apparently in my post-partum fog, I had failed to any pack provisions for this new member of our family.

On a date night a few weeks later, Robbie and I left the boys with generous friends while we took Miren to a fancy Italian restaurant (I’d like to pretend we are that romantic, but the truth is, we had a gift certificate). This time we had learned to pack provisions, but then we promptly left those provisions in the diaper bag with the boys. We realized it as we sat down to eat, but figured What’s the worst that can happen in one hour when you have an easy baby like Miren?

You all know where this story is going, right? Halfway through the meal, she pooped like she had never pooped before, right out of that only diaper and only outfit. Robbie had her up on his shoulder and everyone in the restaurant was making googly faces at her as a bright yellow squash blossom bloomed on her back. I attempted to remedy the situation by giving him a handful of paper towels from the bathroom, but somehow coating your newborn in paper towels does not make you look any more competent.

Not long after this incident, I was forced to do my first day all alone with all three kids. Of course, it happened to fall on Emerson’s winter break, so no school to help me out. And we had scheduled a white cane training appointment with the boys’ vision therapist at the mall – a mall packed with people thanks to the aforementioned winter break. We made quite a scene: two white-haired kids wielding large sticks pushing through the crowds while a teacher tries in vain to yell out instructions. I’m trailing behind with a baby strapped to my chest and a giant diaper bag strapped to my back (provisions – check), all the while drunkenly steering an empty double stroller and begging them not to take out anyone’s kneecaps.

As I collapsed onto the couch later that afternoon, I thought, “Sometimes you have to learn by fire. It can only go up from here.”

For once, I was right.


I’ve streamlined my system, learned my limitations, and increased my confidence. As my Facebook friends know, I even did Ikea by myself with all three kids last week. And I lived to tell the tale.

(To be fair, my husband took all three to Detroit’s Eastern Market last Saturday by himself, which is even more impressive than Ikea.)

The past two months have been a haze of visitors, endless snow, multiple rounds of colds and flus, leaking breasts, exhausting outings, night wakings (they tag team so that someone is always having a bad night), and of course, conveyor-belt diaper changes.



But when people ask me “So…how is it going with three kids?” I hear myself answer:

“It’s going great.”

I never thought I would love the newborn stage, but this time I do. It turns out, when you don’t have first-time parent anxiety (for the most part), when you don’t try to combine major life events like starting school or buying a house with having a baby, and when you don’t have to deal with colicky crying or reflux spit-up, the newborn stage is actually kind of awesome. Who knew?

There is one more factor that has made this post-partum period much easier than the first two times: our community. For the first six weeks, we had a friend or family member staying with us and helping almost all the time. We also received a huge outpouring of meals, baby gifts, babysitting, etc. Within an hour of Miren’s birth, a little boy who lives a couple houses down showed up at our door to ask if he could shovel the thick layer of snow that had blanketed the driveway. Every time I looked out the window after a snow storm for the next month, a different neighbor was already out there with a shovel.

I think I have written over 50 thank you cards and there are still more to be done. Being on the receiving end of so much love is truly humbling. Having such a supportive community for Miren to grow up in is truly a blessing.

In the past couple of weeks, however, the magical cocoon of post-partum recovery has finally come off. The guests are long gone. We have to shovel our own snow and cook our own meals again. I spend every day alone with the kids and Robbie takes over at night so I can take three classes. Chores have to get done, bills paid, and long-neglected projects restarted.

As the youngsters say:

Sh@#’s about to get real, yo. 


But I’m not scared. I’ve got a strategy….and a lot of spare diapers.




Thursday, March 24, 2011

Wednesday, March 16, 2011

Sleep Deprivation



"The Perfect Sleep...Cosleeping" by Julia

Print available for purchase etsy


Sleep Deprivation

She snorts softly through her
Pink pig nose
Bobs her baby bird head in
Search.

Her sounds are muffled at first,
They mingle with my dreams,
Prick at the thick woolen coat of
Sleep that wraps around me.

Then the noises escalate, clawing frantically at my
Black shroud,
Demanding to be heard.

Hands, disconnected from my fogged brain,
Are already unbuttoning.
A breast drips blue water-torture-drips in
Anticipation.

She drinks voraciously, fists tightly balled,
Unaware of the exhaustion that presses into my eyes like a
Hot iron.
Unappreciative of the aching arm that cradles her thrashing head,
Creating a barrier to
Protect her from the dark.

We will rehearse this scene
Again and again throughout the night,
Unwilling actors
Never quite satisfied with the staging.

But when she stirs in the white warmth
Of morning
When her lashes flutter, then reveal two wide and
Stormy eyes,
When her Cupid’s bow mouth purses with
Contentment,
When her soft jowl cheeks become an irresistible
Delicacy.

Then all is forgotten.

All is forgiven.