Tuesday, July 28, 2009

We Made the Radio!!

Ok, not us personally, but the issue of albinism. The World, a show on NPR, did two great stories on the challenges that people with albinism face in the world, including the rampant murders in Africa. Please take a moment to listen - they are short but very informative:

Albinism Worldwide on The World

My only complaint is that they used the term "albino" a million times despite the fact that it's largely rejected in the albinism community. We are pretty laid back about it in our family, but considering how rare it is to have a story on albinism, I hate that the term is being reinforced among the general public.

On the bright side, one of the people they interviewed was albinism expert Dr. Brilliant!! No, that is not his super hero alter ego - that's his actual name. We met him at the Chicago conference and he's actually a sweet man in his 40s or 50s with salt and pepper hair and dark rimmed glasses. I would tell Robbie some interesting fact I noted about the presentation (Robbie and I took turns checking on the kids in the other room, so we had to fill each other in later) and Robbie would ask in his best cartoon voice: "Wait, is that what Dr. BRILLIANT said?!"

This is life with albinism - you find humor wherever you can.

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